The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, September 9, 2012

Zumba Thanks

We want to say Thank You to all those who were a part of the Zumba party. We are very thankful for those who spent many hours putting it together and for those who came to support. It was a good time. Zumba is fun!! Natalie and I enjoyed it. She started out on the floor dancing; then became tired so I sat with her for a moment. She then needed a bathroom break, later a snack, and she even lost a tooth (not from Zumba…phew ;). Between all this I would catch some dancing...I was getting a great workout even with all the breaks. It's great when you can get your heart rate up while having fun.

I especially loved seeing so many friends, whom I have not seen in years and meeting new people who have been cheering us on through this journey. Many thanks!!

Natalie came home and said there were a lot of nice girls at the exercise party; although, she was a little shy, she had a great time.

When she was getting ready for bed she told me that her feet hurt from dancing. It wasn't long that she danced but more than she has before. Where she is today is amazing from where she has come.

Thank you again,


p.s. She was a little disappointed this morning when she woke...that darn tooth fairy forgot to take her tooth. I think we need to fire the tooth fairy, she has only been prompt maybe twice in her career. I ensured Natalie that if she leaves her tooth out during the day she may come while no one is around. After three times checking her tooth...The Ever Forgetful Tooth Fairy finally came. Phew!


  1. Well done Tooth Fairy! Love reading your family's story. Take care all xx

  2. Our Tooth Fairy is a total failure, she's about to be voted off the island