Catch-up! I have set the date on this post for Monday the 21st so I can keep my records straight. It was a long day in clinic. Thank you to Dad Fish for taking the first shift in babysitting and Mom Schellenberg for taking the afternoon shift. Some days are just longer than others.
Alice received IVIG...which takes a good part of the day to infuse. With the IVIG she will be protected from more sickness. Natalie did not require IVIG, instead she spent the afternoon seeing the ENT. She will be having her ear tubes removed. Once the ear drum is completely healed she will have one final hearing test. It will be nice to have a better picture of what her situation might be after the tubes are removed, allowing a better analysis for hearing aids and such.
Counts were well enough for both girls: Natalie's ANC 1700 and Alice's ANC 800. Alice's chimerism is still pending. We are anxious to know which direction it is going.
Natalie is still having some trouble with constipation. It's been hard for her system to find a rhythm since her last hospital stay with the Broviac infection.
Today I was playing dolls with Alice and could hardly keep myself awake, I somehow snoozed off without realizing it...moments later I heard Alice asking me something. I was half awake and vaguely heard her say, "Do you want a booger?" I said yes just to answer her, but I had not registered what she said. The next thing I knew she had put her booger in my mouth. Needless to say I was wide awake from then on, and will be more careful regarding what I say 'Yes' to.
Thanks again for the many prayers and encouragement in our behalf.