The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, May 3, 2012

Red Cross

Yesterday, we had the opportunity to thank the Red Cross and all those who who came to the aid of Natalie and Alice these past few months. It was wonderful meeting people for the first time who had important roles in organizing blood drives. We also know many of you who lead the charge in the organization were not able to attend. To you we give the warmest thanks and look forward to the day we will meet, and can thank you in person.

How we love all of you. Thank you for the posts, emails and texts of encouragement for the girls. It boosts both Lisy and I in a manor that enables us to move forward  a little faster, and gives us strength to finish each day a little stronger when taking care of the girls.  Our thanks to all of you,  will be forever.

Tyler & Lisy

1 comment:

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