The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Wednesday, May 23, 2012

Natalie Has a Fever-Back to the Hospital

Today Natalie complained more about her discomforts.  She felt warm to me so I took her temperature and it was 101.3 or 38.2 .  FEVER!!  I never like to look at the thermometer after it beeps out of worry that it might read high.  She complains that her back is hurting her and it is hard to breath sometimes.   Her constipation has improved some.  We are not sure what it might be this time.

Tyler took Natalie to the hospital while I am home keeping the other children organized.  Amber stopped by to drop something off, and I was glad she did because I needed an extra hand.  She is always so helpful.

Hopefully tomorrow we will have more information regarding Natalie's condition.


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