The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, May 6, 2012

Nurse/Staff Tribute

ICS and Hematology/Oncology Staff at PCMC.

Tyler and I wanted to make a post just for the wonderful Nurses, Techs, and Staff at PCMC.
The pictures below are only some of the amazing people we have been able to surround ourselves with during our time at Primary Children's.  We have been diligently gathering pictures of all the people who have taken part in our journey, however, we know we haven't been able to get even half of those who should be a part of this post...we've decided to add to it as we gather more pictures.  We discovered after gathering several pictures that many pictures were erased by one of the children as they grab hold of our we will continue to add to this.  We feel like Natalie and Alice will appreciate having names to faces when they are older.

All of the wonderful people below are dear to us and have helped make this journey easier as they have provided comfort, smiles, and laughs during this time of hardship.  They have become great friends to us, we  love all the nurses and staff that we have come to know over the last several years.  Some nurses we knew as they began working at PCMC fresh out of school.  Now they are well seasoned nurses.  Where ever we go in the hospital we run into people we have met over the years.  Resident doctors who are through fellowship and have become attending doctors, techs who have finished school and are nurses; it has been fun to watch the progression.  It is fascinating as well for them to watch the progression of Natalie and Alice over the years.

Alice, Loa and Janet

Trisha and Jordan

Rick and Amber

Mitch and Erick

Ben and Dave

Ben, Alice and Dave

Irish, Ben in the back, and Alice

Janet and Sherrie

Mitch and Natalie

Sarah and Natalie

                                                                  Annie and Marie

Andi and Soraya

Trisha, Jen, and Liz

Bess, Noelle, and Kathryn

Jamie and Dave

                                                                       Alice and Sara  

Amber and Erika (Lisy's twin ;))

Rachelle (Hemoc clinic child life), Natalie, and Tracy

Student nurse, Gina, and Kaitlyn

Natalie, Olivia (in back), and Irish

Karina and Becca


(great nurse to have during a code blue)
Amy and Alice


Sally, Alice and Breck

Sally, Alice and Josh


Alena (dietitian)

Alice, Wendy and Sara

Lisy and Emily

Josh, Tommy and Kira

Alice and Courtney

Courtney and Alice

Alice and Ashley

Lisy and Katie (with the foundation)

Sandi and Pam (clinic staff)

Jessica, Stephanie, and Kristin (clinic)

Kathy and Tracey


                                                     Gabby, Nicole, Sara, and Camille

Emily and Alice (best of friends)

Paul (Hemo/Onc. child psychologist) and Tyler

Tomoko and Kiara


  1. Thank you, one and all for taking good care of these beautiful little girls! We who are watching from the sidelines appreciate you, too!

    Katie in New Jersey

  2. It's so fun to see so many people who've helped you through your rough times. For those of us who wish we could do more to help, it's nice to see that you're in such good and loving hands.