The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, December 8, 2011

Cleaning out my Purse

It has been a wonderful day for us to be home, we are getting a lot of cleaning done. We are beginning to feel more organized and ready for the storm ahead. I have to laugh because I was cleaning out my purse (which I do often) and I found at least 7 hospital wrist bands needing to be discarded. Rather than a mess of receipts I have a mess of hospital tags...such is our life. Years ago I would collect them for memories, well I quit doing that. We are trying to simplify our life, we would have bins of those things. Soon Tyler and I will begin posting some pictures and even videos of the girls. Hope you are all well!

1 comment:

  1. I am going to think of you the next time I remove the collection of receipts from my purse and be grateful they aren't hospital bands. :)