Natalie and I celebrated by me giving her a two hour pedicure and foot rub. She loved every minute of it. I ate some left over chex mix from Christmas. She asked me to brush her hair while we watched the ball drop in New York City. By the time I was done brushing her hair the bed was covered. She has several bald spots, and by tomorrow much of her hair will be gone. I have always loved her hair, it's so beautiful and naturally styled itself. I keep thinking about what it will be like when it comes back in...I'm sure it will be just as pretty.
She did better today, the pain was managed with a higher dose of morphine. Despite the higher dose it still hurts to swallow and cough. We encourage her to cough so that it can help keep her lungs clear; although, she still chooses not to.
Dr. Pulsipher came by today and said that everything was following schedule. He did say that she had a considerably bad case of mouth sores, most likely from the significantly increased dose of Chemo (Busulfan) that she required. My concern at this point is the stability of her liver as time passes. The Busulfan and TPN (iv-nutrition) are very hard on the liver. The medication they administer to keep the liver clean and healthy can only be taken orally, which is so hard for her, and once its taken she often vomits. I wish there were an IV version.
Again, thanks for your words of encouragement. I read the email notes to her and the blog comments. When I finished she said, "Is there more?"
Below are some random pictures. Natalie with her brothers before coming to the hospital, and her and Alice together on their bed. The other picture is Natalie and Blair just before Natalie received Blair's marrow.