Natalie's mouth sores presented themselves yesterday morning. She complained that her mouth would not open fully, so I did my best to examine it. Sure enough on both sides of the inside of her jaw were two white spots, looking raw and unwanted. Throughout the day she seemed able withstand the discomfort as Grandmother came to play with her. Into the evening things became worse as Natalie began to complain of soreness in her throat and mouth. I have been diligent in having her do an hourly mouthwash, but that too is becoming even more painful as the antiseptic might as well be salt on an open wound. Around 6am she could not sleep anymore as the pain was too uncomfortable to bare without medication.In addition to the medicine, I rubbed her feet until she fell asleep. Seems like rubbing ones feet has some sort of comfort property to it that works well in times of discomfort. At least it seems to be for Natalie. We will see what today brings as the sores should make their presence known even more in her mouth and throat.
I was sent this link this morning by a friend. It is about the bubble boy 40 years later. It really is amazing how far we have come since then regarding SCIDS