The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, December 23, 2011

Day Plus 2 and David Archuleta

I'm watching Natalie smile in her bed as she watches a Christmas special. She woke up an hour ago from a long nap. She needed to catch up on her rest as she was up all night with leg pain due to the lasting effects of chemo and all the marrow finding the way to its destination. Grandpa Fish stayed with her last night and therefore gave Lisy and I a night off to spend time with children at home. Blair is recovering. He shuffles around like a 85 year old man with scoliosis. It really is cute to watch. He's being pampered to the up most extent and loving every minute of it.

Today Natalie had a visit from David Archuleta. I wasn't there but got a picture sent to me from Grandpa's phone. He sang "Jingle Bells" to her, and although I have no doubt she hadn't a clue who he was, she enjoyed the visit and the personal serenade. Even though I arrived at the hospital long after he was gone, there was a quiet buzz still humming from several of the nurses about how fun it was to hear him sing.



I must say, whoever in the PR department made that happen; bravo to them. Now....if they could get Harry Potter, Ron Wesley & Hermione Granger to walk through the doors of the ICS, and have them conjure up a spell that would make Neil Diamond appear in a red sequined butterfly collard jumpsuit belting out Oh Holy Night; well....that would be nice too.

Tyler
Posted by at 8:12 PM

5 comments:

  1. JaredDecember 24, 2011 at 1:08 AM

    Wait, wouldn't those both be your Christmas wishes?

    ReplyDelete
  2. UnknownDecember 24, 2011 at 9:36 AM

    Wow, what excitement you have going on around there. Natalie looks good. Keep healing
    Loves
    The Christiansen's

    ReplyDelete
  3. Small Threads ClothingDecember 24, 2011 at 11:41 AM

    Love you guys. Wow, Tyler, you always crack us up... red sequined jumpsuit! Hahahahaaa. We pray that the Natalie and Blair heal well.
    -mandy

    ReplyDelete
  4. MissyDecember 24, 2011 at 12:35 PM

    That is awesome! I'm sure some costumed HP's could be conjured as well :)

    ReplyDelete
  5. AnnaDecember 24, 2011 at 8:10 PM

    That looks fun. I'm glad that there are a few perks for Natalie. I'm smiling as I imagine Blair hobbling around. We love you guys!

    ReplyDelete

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