Before I get to The Big News, here is the update. Alice's ANC came up to 1000. She is getting stronger. Her rash looks better. It is confirmed to be Graft vs. Host. Because it occurred very early, it shouldn't be a problem. The rash is being well managed. It will just take a little time for all her cells to learn how to play nicely together, when they learn to like each other the graft vs. host should disappear.
Natalie came to clinic today and visited with Alice. The two had a blast together. Natalie's numbers are wonderful. The doctors decided that she will no longer need her a.m. dose of the anti-viral infusion. She also will no longer need her anti-fungal medication. One more medication off the list, this is good! Hooray Natalie!
The Big Good News is that Evie is all clear, she does not have Leaky SCID! What a relief. We had assumed so, being that she has been so healthy. However, a couple months ago there was some miss communication between doctors and departments, and we were under the impression that she had the disease. About three days had past until things were clarified between doctors...in the meantime Tyler and I were trying to prepare ourselves for a third transplant. I can't lie, that was a really hard couple days for us. We kept it quiet to ensure that the information we received was valid. When we discovered that the results actually had not returned it was a huge sigh of relief, even though we still anticipated the final verdict.
Little Evie Karen...excited for the big news. If only she really knew how big it is.