When she had some energy today she enjoyed skyping with the family. Last night Matthew asked to shave his head. I was up for it so we did, now he looks like Natalie. When Alice was skyping with him, she continued to mistake him for Natalie. It was pretty funny. He spent the morning trying to talk Blair into doing the same thing. Blair wasn't too keen on his proposal.
The video below is a little hard to watch. In the past Lisy and I have written about the occasional, but necessary dressing change both Natalie and Alice go through. I thought of describing tonight's experience, but instead made the decision to capture it and show how difficult it can be sometimes. Thankfully, this was more of a mild experience this evening. I am so impressed with Alice's willingness to do those things which repeatedly cause her pain. She cries, but continues to lie still until the procedure is finished.
That purple balloon has been a source of comfort many times, as well as a good distraction. It must remain somewhere by her bed at all times, she will notice if it's moved.