Alice is a trooper. She received red blood cells today. Her numbers are lingering still at 100ish. Her body really likes challenging the new marrow. Her antibodies are like steel and just need to find their exit. The steroids should help...that is the hope anyway. The question being raised is, "Can the steroids make enough difference on already existing antibodies, or is time the only medicine?" That question has been bounced around a handful of doctors...unfortunately there are a lot of unknown processes that occur in the body.
Tomorrow and the next day will be key for decision making. If there are no improvements in her counts then the steroid will be tapered immediately.
Good news, less vomiting in the past two days--still plenty, but less. Bad news, the diaper rash and pain inside her intestinal track is worsening. It will take several weeks to balance her bowels.
Alice still has no appetite, however, we order food and place it before her. Even one bite can help.
The Backyardigans have worn her out!
But don't worry they are still playing.
Just turn your head to see this picture. I wanted to remember the chaos of the IV pole. I forgot to rotate it in it's original format.