The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, March 10, 2012

Breaking Out

Today I realized how difficult being in quarantine is for my children. Case in point: my sister called me in need of some assistance assembling an office desk they had recently acquired. My son Matthew overheard my conversation and begged to go, so that he could play with his cousins. We wanted more than anything for him to be able to, but we just couldn't take any chances of him bringing something home the girls would catch. He of course was sad, and threw a healthy fit in frustration. I left a few minutes later in a rush so that I could get back and cook dinner. The drive would take close to twenty minutes. On approaching my sister's house, I get a call from home asking if I took Matthew with me. I replied "no," and that I thought Matthew had probably went to hide somewhere and was in the process of simmering down. I hung up the phone; as I made a left handed turn looking to my right, slightly over my shoulder, I caught a glimpse of something that startled me. It was Matthew's legs, laying perfectly still as if he were a character out of a gangster movie settled in the car's trunk. I gathered myself enough to get it on video.....he had no idea I got him on film. I explained to him later the many dangers he may have encountered had I not discovered him there. However, I still laughed at his version of a "jail break."


  1. That is hilarious! Thanks for sharing it.

  2. LOL!!!! What a sneaky little man. Hilarious!