The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, March 3, 2012


Today, really could not have gotten any better as we woke up to lots of snow and the anticipation of Alice coming home. All of the nurses and doctors gathered as they did with Natalie to send her off by singing and ringing the "going home bell." She is still a bit weak and needed help walking, but she got the job done. Oh, how we are enjoying being home, all together at last. She laughed; and with help from her brothers and sisters finally satisfied her longing to play on her slide.



  1. Oh how wonderful! I am so happy for all of you!

  2. That is amazing. My kids clapped along with the doctors and nurses. We are so happy that your family is finally together again.

  3. YAY!!!!!!!! I am overcome with tears of joy and goosebumps; so happy to see this post today. Enjoy your homecoming, Alice!

  4. I am so happy that she is back to home. God is so good. I know that she will feel better everyday. There's nothing like home and be with the family.