The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, March 26, 2012

Clinic and Gone Fishing

Here are some pictures of our clinic visit.





At Clinic today, we found that the girls numbers are steady, Natalie's ANC was 1600 and Alice's was 1400 and heading in the right direction. They both received their IVIG med, which took most of the day. Natalie got a dressing change and an x-ray on her elbow--she has a bump on her left elbow and so we are just being careful...nothing came of it. Tonight I filmed Alice fishing with her medicine, something she loves to do. I'm not sure why, but the sound didn't work on this.



2 comments:

  1. so cute, you can tell she is feeling better.

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  2. I love that you guys can still have fun with them, even if it is fishing with medicine. You are a great family.

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