Now that we are home; we are finding out there is still an adjustment period required to get back into what we would call a normal routine. It really does feel different when I realize that we do not need to figure out logistics of going back and forth between the hospital and home each day. Now it is a matter of staying on top of the medicine schedules for both Natalie and Alice. Also we have to keep a very detailed record of everything Alice eats and drinks to the ounce. Alice is required to take several different types of medicine throughout the day and night. Natalie is down to around five. Lisy and I tag team it the best we can though out the night. We utilize both cell phone alarms to wake us up at different times to switch meds and flush IV lines. Last night I made a minor mistake in not dressing Alice with an overnight diaper, thank goodness for mattress protectors. Both she and Natalie require a 1000/ml of fluid throughout the night. Natalie, of course will get up and go to the bathroom when needed, but Alice....well, she "swamped her canoe". So today we are washing everything. I should have known better. Tomorrow is clinic, where we will take both girls in for a checkup. Hope to have news of more progression tomorrow.