The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, March 27, 2012

A good Day for a Hike

Matthew has been asking to go on a hike for weeks, we finally decided to round up the baby packs and head up to the hills. The doctors had given the ok for us to do so if the conditions were right. So we cleaned up, steralized and masked the girls. The trail we took is only a few minutes from the house and was the perfect little hike for the kids.

It was beautiful, Tyler was able to look over the hill to his old house in Alpine where he grew up. The kids enjoyed the scenery, especially the big horn sheep. It was hard to hold back the urge to sing out "The hills are alive with the sound of music". Had I actually done that I would have scared every living thing off the hill. I hope someday, maybe in heaven, I will have a beautiful singing voice...hmm maybe not!

Natalie did well, she became tired easily, although, she did awesome for having recently been through so much. Alice was carried the whole time, but every once in a while she would pant like she was hiking with the rest of us. She played the part very well.

I would say the hike was the highlight of our day...and possibly week!

1 comment:

  1. That looks really fun. I'd like to know how to get to that hike. I think our family would have a good time checking out the sheep, too. I'm glad that the weather is good enough that you can all enjoy some fresh air.