Only minutes later...this is what happens, and we are just getting started for a long night.
Natalie and Alice went to clinic today. Each time we go to clinic we have plans to visit the unit to say hello to the nurses and others we have become friends with. By the time we are done in the clinic everyone is in tears and anxious to get home....especially today.
Both Natalie and Alice's numbers dropped. Natalie's ANC is 600, Alice's ANC is 100. They are doing great otherwise. Natalie will stop taking a certain type of antibiotic (Septra) that should help elevate her numbers....and Alice on the other hand was given a nasty shot in the leg to artificially boost her numbers. No fun at the clinic today, although, Natalie was kind to the doctors and nurses. Thanks Natalie! Oh yes, I must not forget-they both had their dressings changed. The only good thing I can say about that is it's over for another week...the nurse did a great job and saved us from having to do it at home.
Alice no longer needs TPN (iv nutrition)
Alice's steroid medication will taper slightly
Alice's Graft vs. Host rash has improved
Natalie's fluid level decreased by 1/3rd
Not so Good Changes:
Counts dropped for both girls
Cyclosporine medication increased for both girls
Yesterday, the life flight helicopter flew past us while we were outside and Alice noticed it. Her hospital room had the best view of the helicopter as it would land and fly away. I actually missed the hospital for a small moment when I watched the helicopter pass by. It reminded me of all the great things that have happened recently. Countless blessings and answered prayers, many new friendships, and hopes for a healthier future. Usually when I feel overwhelmed or discouraged I start looking around and notice the many good things I have--in an instant I feel gratitude; it's very difficult to be sad with a heart full of gratitude: many people have helped fill our hearts...thank you!